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  • Writer's picturedrEC@MBTN

MBTN celebrates Dr Najafabadi's new research on Meningioma brain tumor patients quality of life!

In several studies we describe an improvement of surgical techniques, especially for meningiomas of the skull base.  Nevertheless, we report that patients experience participation limitations on average nine years after treatment or diagnosis, especially at work and with friends and family.  Often little attention is paid to this in the outpatient clinic, all the more so because patients are seen at the outpatient clinic at long intervals years after treatment.   It is important to evaluate the functioning and well-being of the patient as well as close relatives and friends, as these are strongly interrelated.  It also appears that patients and care providers experience different outcomes and processes as relevant.  This underlines the importance of patient-reported outcome measures.  Based on the studies presented in this thesis, we propose a meningioma care pathway using 1) case managers who guide patients and relatives, 2) patient-reported outcome measures, and 3) prediction models that help identify individual patients at high risk of developing cancer.  long-term impairment.  The patient will continue to play a major role in future research, so that we conduct research and provide care that benefits the patient.
"KEEP CLIMBING"...Dr Amir Zamanipoor Najafabadi, MD, PhD

Dr Najafabadi's research explores a very critical, yet constantly omitted element of meningioma brain tumor care and that is, the diminished Quality of Life lived experiences of Meningioma patients/survivors, and the how's and why's these life changes should be addressed as a foundational component of the multi-disciplinary care team's aim.

We salute you Dr Najafabadi, for your continuous efforts of striving to develop improved care options that benefit meningioma brain tumor patients/survivors. A perfect fit with MBNT's pillars of service!

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